• Complain, migraine

    I Don’t Want to Complain

    I have been battling Hemiplegic Migraines for over 20 years. They were only two or three times a year until two years ago. For some reason, my episodes started coming multiple times a day and most every day. I don’t want this blog to become a place for me to…

  • Circaidian MIgraine is very real! - #migraine #daylightsavingstime #seasonalmigraine

    Why Daylight Savings Time is a Pain (…literally)

    While many people are excited about the Daylight Savings time change that brings longer days and warmer days, I am not among them. My Doctor from the Mayo Clinic says that my Hemiplegic Migraine react to circadian rhythms. Well, what is a circadian rhythm? The “body clock,” is a cycle that tells…

  • So, what exactly am I apologizing for? It’s not like I can help it. #guilt #chronicillness #migraine #mentalhealth

    Why I Apologize

    One of the first things I say after a Hemiplegic Migraine episode and I am actually able to put words together is “I’m Sorry”. And now that I have learned to sign, “I’m Sorry”, I say it before I even get my voice back. Why do I feel like I need…

  • The Trigger That Can’t Be Avoided

    I changed my diet to avoid the nitrates, MSG, CHOCOLATE and certain cheese that are triggers for my Hemiplegic Migraine. You know, those things that can keep me in the dark cave for the rest of the day. I have tried to learn new ways to handle stress and I…

  • Mask, chronic illness, migraine,Hemiplegic Migraine

    Taking Off the Mask

    I, like most people with a chronic illness, am really good at hiding how I feel. I wear a mask, a facade. If you ask me how I am doing, I will probably say okay or fine. I want desperately to be normal…to have normal days with normal ups and…

  • The Emergency Room Migraine Stigma - #migraine #chronicmigraine #health #healthcare #stigma

    I Am Not a Drug Seeker

    Do you want to know what it is like to be treated like a drug seeker? Go to the ER and tell them you have a migraine. Often times you are talked down too, disrespected, made to feel like you are a bother to everyone around you. They often give…

  • Hard week, sick, migraine, medication

    Hard Week and Frustration

    Honestly, this has been a hard week. I had a reaction to one of my medications. It just so happens to be the one that keeps the fluid pressure from building up around my brain. My right eye was swollen, my kidneys were not functioning well and I had absolutely no…

  • What my life was before chronic illness took over. - #chronicillness #migraine #chronicmigraine #hemiplegicmigraine #thefrozenmind

    What Life Used to Be

    In order to explain what has been taken from me, I must explain what my life used to be. At one time I had a sarcastic wit and loved to make people laugh. I sang on the praise team at church and was heavily involved in the women’s ministry. With…

  • Step, journey, migraine

    The First Step

    As I begin the journey of posting about my life with a chronic illness…more specifically Hemiplegic Migraine…I decided that before I can explain how it effects me and my life that I need to explain what it is. I must take the first step. WebMD’s definition is as close to…