• Sound, chronic illness, migraine,Hemiplegic Migraine, invisible illness

    I Sound too Good to be Sick

    When you have a chronic illness, many things are said to you that seriously make you scratch your head. I realize that the majority of people are well-meaning and are not meaning to hurt feelings or frustrate. They simply are not aware and are trying to help. Their heart is in the right place and you know it. There are those that provide suggestions for treatment that are actually meant to be divisive. Like they are somehow trying to “trip you up” to prove that you aren’t really that sick. These are the truly annoying ones that make you want to step onto your soapbox and shout to the world…

  • Phantom smells

    The Truth about Phantom Smells

    One of the Migraine symptoms that my husband and I are able to find humor in is my ability to smell the strangest things before a migraine. This phenomenon is called Phantosmia, Olfactory Hallucinations or in simple terms, phantom smells. Basically, it means smelling things that are not there. It sounds strange but it is actually fairly common for migraineurs to experience. This symptom is part of the Prodrome phase of a migraine (the phase before the migraine actually begins). If you are able to recognize them, they can be a warning sign for the looming Migraine. My most common smell is fresh baked Blueberry Muffins. No matter where I was…I would…

  • Light sensitivity

    Light Sensitivity and the Products I Use to Help

    A lot of chronic illnesses include light sensitivity as one of its symptoms. For migraineurs, this is probably one of the most common symptoms. Sometimes I am so light sensitive that sunglasses aren’t even enough. It is also one of the most difficult symptoms to control because unless you are in your home the type of lighting used and the brightness is completely out of your hands. But it isn’t just lighting in public places that are the issues. Headlights of oncoming traffic, flashing lights of any kind, dappled sunlight coming through trees, glare from looking outside from a window…all of these and more leave me struggling to avoid this…

  • Brain fog, migraine

    The Truth about Brain Fog

    Everyone on Earth has those moments when you can’t grab the word for something or have times when you would forget your head if it wasn’t attached. But these are just fleeting moments…now imagine being that way a lot. This is called brain fog. Most people with Migraine and other chronic illnesses experience brain fog at some level and it is one of the most frustrating symptoms of my migraines. So, let’s start with a definition of brain fog: Brain fog isn’t a medical condition itself, but rather a symptom of other medical conditions. It’s a type of cognitive dysfunction involving memory problems, lack of mental clarity, poor concentration and…

  • Migraine, myth busters

    Myth Busters: Migraine Edition

    I have picked out 5 myths about migraine and will explain why they are not true. It isn’t possible to have a migraine everyday – If a migraine attack occurs at least 15 days a month for 3 months or more then it is called Chronic Migraine. Episodic Migraine is the type of Migraine that occurs for less than 15 days a month. So, yes, it is possible to have daily migraine attacks. Migraine is just a bad headache – Migraine is a neurological disease that is characterised by a severe throbbing pain in one side of the head along with other symptoms such as nausea or vomiting. A headache…

  • Safety, plan, Migraine, chronic illness, chronic migraine

    Importance of a Migraine Safety Plan …

    As I have mentioned before, I have a rare type of Migraine called Hemiplegic Migraine. My aura symptoms include stroke like symptoms and includes vision loss, right side paralysis, inability to say words (just comes out as jibberish) and right side facial numbness (includes tongue and sometimes throat tingling). That is on top of the excruciating headache, light and sound sensitivity. That means being safe in my home has become very important. The reason I am posting this is because yesterday I was reminded of how important that really is. I went downstairs to freshen up my drink (My Yeti cup helps but eventually the ice still melts!). What was…

  • The simplest things have become the most difficult things. #selfcare #chronicillness

    When You Need a Nap After a Bath

    I used to love nothing more than soaking in a hot bubble bath. It was a way to relax and pamper myself. But it has now landed on the list of things that I used to do. Why? To start with, I can no longer use hot water. I had to get used to much cooler baths. If I make my bath a sauna like I used to I will get way too hot. When I get way too hot it triggers a Hemiplegic Migraine. The most frustrating part is that baths no longer relax me and they are no longer a way to pamper myself. Baths have to be…

  • Status Migrainous, status migraine, migraine

    What is Status Migrainous?

    Saturday night I made that dreaded decision to go to the ER. My Hemiplegic Migraines were coming every 2-3 hours. Another words, as soon as I would get over one Migraine another one would hit. It is like riding a roller coaster that will not stop and let you off. In short… I was miserable, my body was tired, my brain was exhausted. I had used every rescue method in my “toolbox”…nothing helped. This phenomenon has an official medical name, Status Migrainous. Status Migrainous are the dreaded words that a lot of migraineurs don’t even know about. The basic definition is any Migraine that lasts more than 72 hours but a lot…

  • Hangover, migraine

    It’s Migraine Hangover Day

    Once my feet hit the floor I realize that although my pain is gone, my body apparently didn't the memo that it is supposed to function correctly today. I try to remember why I was even getting out of bed...my brain just can't seem to hold my thoughts...it is hangover day!

  • Migraine: Not Just a Bad Headache - Headache is only a symptom of a Migraine - #migraine #stigma #health #chronicillness #headache #symptoms

    Migraine: Not Just A Bad Headache

    If you have migraines of any type, you know that the second you say, “I had a migraine this weekend” that inevitably someone will say, “I get bad headaches and I just take a Tylenol and it goes away”.