• Sleep, insomnia, migraine

    The Elusive Sleep and Migraine

    It doesn’t seem to matter how much I take care of myself, the one thing I seem to be constantly hunting is a good nights sleep. My inability to sleep effects how well I function during the day and compounded with other triggers, such as weather, can lead to an increase of migraine episodes. Lack of sleep also gives me less “juice” to fight the pain once a migraine episode has begun. Here is how a typical night goes. Around 10:30, I am tired and ready for sleep. I get comfy and cozy, my husband and I pray and say our good nights, then my husband turns off the light.…

  • Food, trigger, migraine

    Eliminating Migraine Trigger Food

    Having Chronic Hemiplegic Migraine has taken a lot of things from me but none has been more frustrating than some of the food I can no longer eat. Figuring out food triggers is especially difficult because it is not easy to track. A migraine triggered by food may not happen for up to 48 hours after the food is consumed. Because of this, I made a decision to stop eating some of the major food that is known to trigger migraine. Here are a few of the foods that I have stopped eating: Hard Cheese Each variety of cheese is classified by 4 categories; Hard Cheese, Semi-hard Cheese, Semi-soft cheese…

  • 5 Strange Migraine Cure Suggestions

    If you struggle with migraine then you know that everyone likes to bombard you with treatment ideas. Most of them are pretty basic and are not the migraine cure but offer no consequences either. Like “drink more water” I hear this one a lot! The internet is a great resource for all kinds of strange migraine “cure” suggestions. And then there are those “cures” that go above and beyond your BS meter. A few of these deserve some recognition as the strangest of the strange. Strange Migraine Cure #1 ūüĆł Putting your feet and head in hot water while putting a bag of frozen peas on your neck will pull…

  • 4 Challenges I Face Because of Hemiplegic Migraine

    Hemiplegic Migraine has handed me some challenges that sometimes feel like mountains that I cannot climb. Other struggles are not as dramatic or difficult to navigate but put stumbling blocks in my path. Here are some of the most prevalent challenges that I face the most:

  • Faith and Chronic Illness - #faith #Christianity #ChronicIllness #Healing

    My Journey of Faith and Chronic Illness

    When my health started to deteriorate two years ago, I was active in the pursuit of finding God within my struggle. I prayed through the worst of my pain, I read my Bible daily and I used Worship music to help strengthen my faith.  My relationship to God saw me through the days when my life was being shattered. As the journey of sickness continued, I lost my ability to be active within my church. I could no longer sing on the Praise Team. Not only because of the energy required but because the cognitive delays that resulted from Hemiplegic Migraine had made keeping rhythm and staying on key impossible.…

  • All We Can Do Is Remember

    “It is, in a way, an odd thing to honor those who died in defense of our country, in defense of us, in wars far away. The imagination plays a trick. We see these soldiers in our mind as old and wise. We see them as something like the Founding Fathers, grave and gray haired. But most of them were boys when they died, and they gave up two lives — the one they were living and the one they would have lived. When they died, they gave up their chance to be husbands and fathers and grandfathers. They gave up their chance to be revered old men. They gave…

  • Tapering off of Lamictal – Part 2

    A few weeks ago, I posted Part 1 of a two part series about Tapering Off of Lamictal. Lamictal¬†is the first of two seizure medications that I am tapering off of. Since Part 1 posted, I continued to decrease by 50 mg every 5 days. Each decrease included the same eye pain and extreme light sensitivity but that start decreasing in duration. The nausea was no longer a real factor and the joint pain and aches had subsided. After the drop down in which I took no Lamictal in the morning, I only had the eye pain for 1 day. Then I started having trouble sleeping. It was like my…

  • Things Only a Chronic Migraine Warrior Understands - #chronicmigraine #migraine #stigma #chronicillness

    6 Things Only a Chronic Migraine Warrior Understands

    I live a life in which I have a migraine almost every day. A diagnosis of Chronic Migraine requires that a person have at least 15 Migraine days a month and I blow that out of the water. All of this gives me an understanding that most people do not have about Migraine. Here are 6 things only a Chronic Migraine Warrior understands: You know it is not just a “bad” headache! In fact, you know that it is an excruciating headache that is debilitating to your entire body. Actually, you know that a Migraine isn’t a headache at all…the headache is only a symptom of the Migraine. All activities…

  • New Chronic Migraine Treatment Approved by FDA …

    Yesterday, the FDA approved a new drug called Aimovig. It the first medication designed specifically to prevent migraines. Until now, the only preventative treatments were medications that are actually for something else, mostly High Blood Pressure and Epilepsy. A lot of people are not helped with these medications and are left with few options…I am in this category. According to Migraine.com, Aimovig is a “…calcitonin-gene-related peptide (CGRP) blocker. CGRP is a newly identified protein that acts like a neurotransmitter (a chemical messenger) throughout the brain and body. It is a monoclonal antibody that targets and neutralizes the CGRP receptors. By not allowing CGRP to connect with its receptors it helps…

  • The Positive Side of Chronic Illness

    It is very easy to list out the negatives of having a chronic illness. The obvious ones may be high medical costs, lack of social life, not being able to participate in family functions and the list could go on and on. Sometimes it is a good idea to think about the positive side as well. It sounds kind of silly but there are indeed positive things to be learned and experienced because of chronic illness. Empathy- This is probably the one that I have learned the most about. A lot of people have no clue what to say to someone that is struggling with a life-altering chronic illness much…