• For many Migraine Warriors, the season changes mean more Migraine Attacks. Find out why and what that may mean for those that have Migraine. - #Migraine #Seasons

    Migraine Explained: Season Change

    Autumn is here and it is time for fire-pits, s’mores, trick-or-treaters, pumpkin-spiced everything, and for some, an increase in migraine symptoms. As the autumn leaves colors of red and gold brighten the horizon, as the season change also creates changes that can trigger migraines. What Factors Cause Triggers as the Season Change? Barometric pressure change is the most common seasonal migraine trigger. As the seasons change, the barometric pressures shift and these changes, though sometimes minor, can trigger migraine attacks in people that are highly susceptible to barometric pressure changes. Cynthia Armand, MD, a physician at the Montefiore Medical Center in New York, explains the reason. “Our head is made…

  • Chronic Hemiplegic Migraine: A Migraine that produces temporary stroke like symptoms. #hemiplegicmigraine #migraine

    Chronic Hemiplegic Migraine Defined

    I blog about my journey with Chronic Hemiplegic Migraine. Most people hear the words but hang on to the word Migraine at the end and think, “she has a headache”. The vast majority, including medical professionals, never stop to think about the implications of the two words I said before the word Migraine.  So, I want to break down what they words mean and then discuss how it is much more than having a headache. What Does Chronic Mean? According to Medicine.net, the medical definition for chronic is: A chronic condition is one that lasts 3 months or more. Chronic diseases are in contrast to those that are acute (abrupt,…

  • It was a win because the team won and because I made it through the entire game. It was a defeat because doing so pushed my body well beyond its limits. - #boundaries #health #chronicillness #hemiplegicmigraine #football

    When a Win Feels Like a Defeat

    Last Friday night, my step-grandson was playing in the first varsity football 🏈 game of the season. I really wanted to go because I had missed the entire season last year. I wanted to see him help his team get the win! Right from the start, I knew this was going to be an up hill battle because of the heat and humidity. My husband and I talked through every possible scenario and planned for each of them. We planned for the worst possibility which would be having a full blown Hemiplegic Migraine at the game. Planning this was made more difficult because we didn’t know how far the parking was…

  • “Nevertheless, She Persisted - #chronicillness #perserverence #facingadversity #migraine

    “Nevertheless, She Persisted” – My Weekend Mantra

    The weekend wasn’t  a complete bust but it wasn’t a total success either. What I can say is that I did my best and no matter what happened, I persisted! I didn’t stop trying. Over the past few weeks, the weather has been rough. High humidity, High temperatures, storms and the barometric pressure changes have really taken a toll on me. These are all migraine triggers for me and there is nothing I can do about them…except push through. I woke up on Saturday morning around 5 am with a Hemiplegic Migraine that fortunately responded well to my medication and I slept for a few hours more. When I woke…

  • LETTER TO MY BRAIN - #migraine #hemiplegicmigraine #aphasia #aura #paralysis

    Letter to my Brain

    Last week, several people wrote letters to their brain. I made a comment on Jay’s post over at beardedigor.wordpress.com that I would be afraid of what I would say. He said I should do it…Challenge Accepted! Dear Brain, What On Earth is going on up there? For the many years you would act up on rare occasions but then you decided to be naughty every single day. It was bad enough when my the right side of my face would droop and my vision would get all sparkley. But when you decided that I didn’t need my right arm to work you went way over the line. Never mind the horrendous pain, which…

  • Food, trigger, migraine

    Eliminating Migraine Trigger Food

    Having Chronic Hemiplegic Migraine has taken a lot of things from me but none has been more frustrating than some of the food I can no longer eat. Figuring out food triggers is especially difficult because it is not easy to track. A migraine triggered by food may not happen for up to 48 hours after the food is consumed. Because of this, I made a decision to stop eating some of the major food that is known to trigger migraine. Here are a few of the foods that I have stopped eating: Hard Cheese Each variety of cheese is classified by 4 categories; Hard Cheese, Semi-hard Cheese, Semi-soft cheese…

  • Drive

    The Reason I Had to Stop Driving

    Simply put, I love to drive and at one time I considered myself adventurous. Not bungee jumping or mountain climbing adventurous but if I wanted to go somewhere there wasn’t much that could stop me. I had no fear about going somewhere by myself and was ready for a road trip any time. To me, driving equals freedom. The freedom to go to the store when I want, make appointments without feeling like a bother…the freedom to go places. Things are a lot different now. I stopped driving in November 2016 and other than a few short trips last August, I have not driven since. Why? For starters, the Hemiplegic Migraines (to…

  • 5 Strange Migraine “CURE” Suggestions

    If you struggle with migraine then you know that everyone likes to bombard you with treatment ideas. Most of them are pretty basic and are not the migraine cure but offer no consequences either. Like “drink more water”…I hear this one a lot! The internet is a great resource for all kinds of migraine “cures”. And then there are those “cures” that go above and beyond your BS meter. A few of these deserve some recognition as the strangest of the strange. 🌸 Putting your feet and head in hot water while putting a bag of frozen peas on your neck will pull the blood from your head. This will…

  • Tapering off of Lamictal – Part 2

    A few weeks ago, I posted Part 1 of a two part series about Tapering Off of Lamictal. Lamictal is the first of two seizure medications that I am tapering off of. Since Part 1 posted, I continued to decrease by 50 mg every 5 days. Each decrease included the same eye pain and extreme light sensitivity but that start decreasing in duration. The nausea was no longer a real factor and the joint pain and aches had subsided. After the drop down in which I took no Lamictal in the morning, I only had the eye pain for 1 day. Then I started having trouble sleeping. It was like my…

  • Sound, chronic illness, migraine,Hemiplegic Migraine, invisible illness

    I Sound too Good to be Sick

    When you have a chronic illness, many things are said to you that seriously make you scratch your head. I realize that the majority of people are well-meaning and are not meaning to hurt feelings or frustrate. They simply are not aware and are trying to help. Their heart is in the right place and you know it. There are those that provide suggestions for treatment that are actually meant to be divisive. Like they are somehow trying to “trip you up” to prove that you aren’t really that sick. These are the truly annoying ones that make you want to step onto your soapbox and shout to the world…