• The Wall is that place at the end of your energy. It is something that you never want to crash in to. Here are some ways to avoid the crash! #ChronicIllness #Energy

    What Does Your Wall Look Like?

    What is a wall? It is that ugly thing at the end of your energy. You do not have to have a chronic illness to have one because no one has endless amounts of energy. Sometimes getting ready for the day (showering, brushing hair and teeth, getting dressed, etc.) slams me right into it. Then there are days that I actually have enough energy left to get out of the house. And yes, some days I wake up and I am mere inches from that wall.

  • Arnold Chiari Malformation is a condition in which brain tissue extends into your spinal canal. #ChiariMalformation #Chiari #ChronicIllness #NeurologicalDisorder

    Chronic Illness Spotlight: Arnold Chiari Malformation

    Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. In the last edition of Chronic Illness Spotlight, we learned about Crohn’s Disease. In today’s edition we will learn about Arnold Chiari Malformation and will feature Zosha Faith.

  • The struggles of Chronic Illness can affect your mental health in a negative way. It is important to recognize the symptoms of depression and seek help when you need to. #MentalHealth #ChronicIllness #Depression #Anxiety

    Mental Health and Chronic Illness

    Fighting a Chronic Illness is hard work! It doesn’t matter if your battle is against Lupus, MS, ME/CFS, Chronic Migraine, fibromyalgia…the list could go on and on. The honest truth is that the battles are real, the battles are life-altering and the battles are not easy and can have long term effects on your mental health.

  • When you have a Chronic Illness, it is best to make simple goals rather than elaborate ones. Here are my simple goals for February using the prompts from A Chronic Voice. #Goals #ChronicIllness #February

    Making Simple Goals When You Have Chronic Illness

    When you have a Chronic Illness, life can sometimes be messy and complicated. It is hard to make plans and it is even harder to set goals. It is important to make simple goals that are more short term rather than long term goals that are more elaborate. The writing prompts from A Chronic Voice always seem to fit in perfect with my focus each month. So, I have been using them as a way to make simple goals each month. It has worked perfectly because they give me a starting point each month.

  • Systemic Lupus is a chronic illness that causes systemic inflammation throughout the body. And can impact many organs such as the kidneys, liver and brain. #Lupus #ChronicIllness #SystemicLupus

    Chronic Illness Spotlight: Systemic Lupus

    Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. Today’s post will spotlight a Chronic Illness called Systemic Lupus. What is Systemic Lupus? Also known as Systemic Lupus Erythematosus or SLE, is a chronic illness that causes systemic inflammation throughout the body. According the American College of Rheumatology, “In addition to affecting the skin and joints, it can affect other organs in the body such as the kidneys, the tissue lining the lungs (pleura), heart (pericardium), and brain.”

  • My main goal when I started the blog was to be a part of the solution by putting valuable information about chronic illness out there. As I review the year, I think that I met this goal. This will continue to be a part of the mission of The Frozen Mind.

    2018 – A Year in Review

    This is my last blog post for 2018! This year has been an amazing year and I want to thank all of my readers. With this post, I want to review my first year of blogging. This blog will be 1 year old in January and that is so hard to believe. So, let’s review some of my blog stats and then I will list five of my most popular posts. A Year in Review Total Views: 49,860 Total Blog Posts: 213 When doing a review of the year, these numbers blew me away. I never could have imagined on the day that I wrote that first post that I…

  • Using the energy you do have in strategic ways will allow you to get more accomplished. #ChronicIllness #Exhaustion

    Getting the Most of the Energy You Have

    Most people can relate to there being too many days left at the end of a paycheck. When you are in that situation, you have to pinch every penny to make it to the next payday. It is very similar when you have a chronic illness and you have too many hours left after the end of the energy.  Planning is the most important part of making the most out of the energy that you have. Nothing is worse than running out of energy. When I hit my wall, it is not pretty and always includes a physical collapse and hours of recovery.  Getting the Most Out of the Energy…

  • Sometimes Family Gatherings during the Holidays do not go as smooth as they should. If you have a Chronic Illness the hard conversations inevitably will come. Here are 5 of the more common ones and how to avoid the. - #Christmas #ChronicIllness

    5 Hard Conversations to Avoid During the Holidays

    Everyone has that one person at their holiday gatherings that has no tact or asks rude questions. This is probably even more noticeable to people that have a chronic illness. We are used to having  hard conversations with those relatives that just don’t know how to keep their opinions to themselves. What Hard Conversations? “Well you don’t look sick” – This is one of the most inconsiderate statements that someone can make to someone that is chronically ill. Most chronic illnesses can’t be seen on the outside and are considered, “invisible Illness”. HOw I look doesn’t determine how I feel on the vast majority of days. “Shouldn’t you Try a New…

  • What is Allodynia and what is the connection with Migraine? - #SkinPain #Migraine

    Migraine Explained: Allodynia

    Before I knew the word Allodynia One day, while having a Hemiplegic Migraine, my husband was trying really hard to help me get comfortable. This is no easy task since I have no use of my right arm and I can’t talk during the attack. I was getting frustrated because I couldn’t just say that something was making my feet and legs hurt. It wasn’t long before he was frustrated too. He felt really bad that nothing he was doing was helping me. Honestly, I wasn’t sure what he could do to help because I didn’t know why I was in pain. Fast forward a couple of days, another Hemiplegic…

  • What to Wear when you want to be Cozy: A day at home requires clothes that are effortless, comfortable and functional. #fashion #chronicillness

    Comfortable Clothes to Wear When You Want to be Cozy

    Because I can’t drive, I spend a lot of time at home. My body requires a lot of rest during Hemiplegic Migraine attacks so dressing for those occasions is important. Having comfortable clothes is important but because of the partial paralysis I have during attacks, functionality is just as important. What Do I Look for When Buying Comfortable Clothes? Pants For pants, the first thing I look for is an elastic waist. This will make it easier for me to go to the restroom if I only have 1 functional arm. This is also important if I am doing things outside of the home with my husband. I really don’t…