Why I Hesitate to Use My Mobility Devices

Why I Hesitate to Use My Mobility Devices

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Over the past couple of years, my ability to walk long distances had decreased drastically. Very little activity will leave me exhausted and sweating profusely. I made a decision to get two different types of mobility devices so I can get out of the house for longer periods of time. There is just one problem, I am hesitant to use them.

I guess I have to admit here that pride is one of the reasons that I am not eager to use my wheelchair and my Rollator. It is obvious that I worry way too much about what people are going to think. I do need them because when I don’t use them, I can barely get down one aisle in a store and I have to leave. But I feel like that is the part that people don’t see.

That is the problem with an invisible illness and it is a hard battle to fight. If someone does get the idea that you don’t “need” to use it then the looks are horrible. I know because I have seen people glare at me when I have used the in store wheelchairs.

Admitting to Myself that I need Mobility Devices is Hard

The other reason that I am hesitant to use the mobility devices is because it is hard to admit to myself that I need them. I desperately want to be able to go to the grocery store like everyone else  but the truth is that I just can not do that. If I push myself to the complete point of exhaustion, it will take me up to a week to recover.

So, I might be prideful and I most definitely am stubborn but the difference is made when I use them and I am able to get through an entire store! It does me so much good to be able to do the things that I need to do. I makes me feel great to know my husband doesn’t have to make 2 trips to the store because I wasn’t able to make it long enough the first time.

Change of Attitude

A few weeks ago, I wrote a post about going to my step-grandson’s football game called, When a Win Feels Like a Defeat. This is a time when I should have used my wheelchair and didn’t. It took an entire week to recover from the physical exhaustion it caused. This was the experience that made me rethink my attitude toward my mobility devices.

Why I Hesitate to use my Mobility Devices - #disability #mobility #wheelchair #chronicillnessI realized that in order to live a fuller life that I have to use them. It doesn’t matter what it looks like, it doesn’t matter what others think and it doesn’t matter what looks I get. I don’t want to spend 5 minutes somewhere and have to leave. It is important to me that I am able to go and enjoy myself…I want to live my life no matter what it takes. That means occasionally using my wheelchair and on better days using my rollator.

It was at this time a decision was made that I would indeed be using the wheelchair on our trip to Washington DC. It is not the decision that I wanted to make and it is not the way that I really wanted to do it. BUT it is the only way to ensure that I will be able to physically do all of the things that we want to do while we are there.

Do you have a love-hate relationship with your mobility devices? If so, how do you handle it?

18 thoughts on “Why I Hesitate to Use My Mobility Devices

  1. You have made a big decision but it is one that is best for you. You will grow to love your mobility devices because they allow you to be yourself more than you could know at this time. They allow you to do the things you so desperately want to do. Keep your chin up and move forward with pride and dignity. You’ve got this, Jen!

  2. I have to use my cane all the time, there’s simply no choice. If I need to go a longer distance, then my rollator is the next step…where I have difficulty with acceptance is using my wheelchair. I feel like I could use my rollator for everything, but my husband knows that I will be exhausted far sooner than I should be, and he’s the one who insists that the wheelchair makes sense.

    He always tells me that since he’s the one who’s pushing it, he should decide if it’s going to be used or not, and he votes yes. LOL. I usually give in because I know what he’s saying is right…I will be exhausted faster if I don’t use it. I just feel weird sometimes, like I’m faking it, because I have Invisible Illnesses, but he doesn’t care. He just wants me to enjoy our outings with as much comfort as possible so that’s what I try to remember. It’s more convenient sometimes and definitely easier on my body.

  3. Posts like this one are so important. Thank you for being vulnerable, and talking about this. Other people find strength in posts like this… Also, you deserve to enjoy life. Use whatever resources you need to use. Live a full life. You are awesome, and you deserve it.

  4. I’m glad to read that your outlook on mobility devices has changed and that you are now enjoying your holiday to the fullest thanks to them (and your pushing husband). I can’t wait to hear how it went!

  5. I have braces rather then wheelchairs. I feel stared at and judged for wearing and not wearing them . I have EDS and some days are better then others. My last vacation we went to Disney world. Omg it was a dream come true. The only reason I made it through though was the wheelchairs and scooters we rented . Being 39 it was hard to scooter to a ride and walk on albeit with braces showing . The staff- AMAZING. Other people going to enjoy the various rides and exhibits not so much. So be brave . Take the help when you need it as getting to the gate where we rented was killer somedays. and last but never least THANK YOU to the husbands , sons, friends, and any helping hands who push us all around . Your heroes to us . ❤

    1. So far, everyone has been great! I have not been made to feel bad except for 1 time.

      Next week, I will be doing travel blogs and including handicap accessibility in each place we have been. There have been some winners and losers in this department.

      I am excited to share my trip with everyone!

  6. I was the same way “worried about the stares”. I had a difficult time getting my head around that but now…..I have embraced the independence that my wheelchair gives me. No more struggling the next day because I’m exhausted. I go out even if it’s just a stroll around the block to enjoy the sunshine. My quality of life has improved and that’s important.

  7. Interesting post – it must be hard to accept it (in your head). We don’t like to admit we are getting older or frailer or weaker. But sometimes it’s in our best interest to just go with it.
    Hope it gets easier for you. Good luck #KCACOLS

  8. It must be hard but if it helps you to get around and explore then it can only be a good thing. We wouldn’t think twice about anyone using a bike instead of walking and at the end of the day that’s only a kind of mobility aid, although one that’s used . #KCACOLS

  9. I’m 48 and am struggling with my stubbornness at using the mobility devices also. I am, at times, my own worst enemy. I’m coming on my one year anniversary of my diagnosis’s and still laboring at the whole pacing concept. Thank you for your honesty and allowing me to see that I’m not alone in this !!!

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