• Oh Please Go Away…

    I really try not to whine or complain on here because my goal for this blog is to educate and help others. BUT some days it is ok to not be ok. It is acceptable to say if you are having a hard time. It is perfectly fine to be…

  • Migraine: Not Just a Bad Headache - Headache is only a symptom of a Migraine - #migraine #stigma #health #chronicillness #headache #symptoms

    Migraine: Not Just A Bad Headache

    If you have migraines of any type, you know that the second you say, “I had a migraine this weekend” that inevitably someone will say, “I get bad headaches and I just take a Tylenol and it goes away”.

  • When It Won’t Go Away - #migraine #chronicillness #pain

    When it Won’t Go Away

    Yesterday , I had one of those Hemiplegic Migraines that made me text my husband to come home from work. The pain was a 9 with spikes that were much worse. I couldn’t see out of my right eye, my right arm wouldn’t work and in trying to get my…

  • Complain, migraine

    I Don’t Want to Complain

    I have been battling Hemiplegic Migraines for over 20 years. They were only two or three times a year until two years ago. For some reason, my episodes started coming multiple times a day and most every day. I don’t want this blog to become a place for me to…

  • Circaidian MIgraine is very real! - #migraine #daylightsavingstime #seasonalmigraine

    Why Daylight Savings Time is a Pain (…literally)

    While many people are excited about the Daylight Savings time change that brings longer days and warmer days, I am not among them. My Doctor from the Mayo Clinic says that my Hemiplegic Migraine react to circadian rhythms. Well, what is a circadian rhythm? The “body clock,” is a cycle that tells…

  • So, what exactly am I apologizing for? It’s not like I can help it. #guilt #chronicillness #migraine #mentalhealth

    Why I Apologize

    One of the first things I say after a Hemiplegic Migraine episode and I am actually able to put words together is “I’m Sorry”. And now that I have learned to sign, “I’m Sorry”, I say it before I even get my voice back. Why do I feel like I need…

  • The Trigger That Can’t Be Avoided

    I changed my diet to avoid the nitrates, MSG, CHOCOLATE and certain cheese that are triggers for my Hemiplegic Migraine. You know, those things that can keep me in the dark cave for the rest of the day. I have tried to learn new ways to handle stress and I…

  • Mask, chronic illness, migraine,Hemiplegic Migraine

    Taking Off the Mask

    I, like most people with a chronic illness, am really good at hiding how I feel. I wear a mask, a facade. If you ask me how I am doing, I will probably say okay or fine. I want desperately to be normal…to have normal days with normal ups and…

  • The Emergency Room Migraine Stigma - #migraine #chronicmigraine #health #healthcare #stigma

    I Am Not a Drug Seeker

    Do you want to know what it is like to be treated like a drug seeker? Go to the ER and tell them you have a migraine. Often times you are talked down too, disrespected, made to feel like you are a bother to everyone around you. They often give…

  • Hard week, sick, migraine, medication

    Hard Week and Frustration

    Honestly, this has been a hard week. I had a reaction to one of my medications. It just so happens to be the one that keeps the fluid pressure from building up around my brain. My right eye was swollen, my kidneys were not functioning well and I had absolutely no…