• A Fresh Perspective …

    One week ago, I was admitted to the hospital because my migraine auras were coming every 2 hours. My pain was off the charts and my brain was exhausted. During my stay in the hospital, I didn’t post a blog because I really needed to stay off of screens and focus on getting better. I got home from the hospital on Tuesday and it feels so good to be home. It is kind of funny how you go to the hospital to get better and to rest but no one will leave you alone long enough to rest. And if someone isn’t bothering you, a machine will start beeping. Here…

  • Expect the Unexpected …

    One thing that is inevitable about having a chronic illness is that plans can change in an instant. I had planned on watching the Migraine World Summit everyday and posting my thoughts on one of the topics each day. Unfortunately, my unpredictable, chronic life had different plans for me. I am currently writing this in my hospital bed. I spent yesterday riding for 3 hours to the Mayo Clinic Emergency Room because my Doctor wanted me to be admitted. Then I spent most of the day in the ER before getting my room. See, having a chronic illness means that sometimes you can’t keep pushing on in spite of how…

  • Doctor, enemy, chronic illness, healthcare

    Are Doctors Your Enemy?

    I am sitting in a Doctor’s office and I am dreading this appointment with yet another Doctor. Honestly, I am already frustrated. All of the Doctors before this one were cold, uncaring and didn’t take me seriously and I know that this one will be the same…because they are all trained the same way, right? I had even had one Neurologist tell me, “it is a headache; get over it”. This Doctor walked in, introduced himself then he shook my hand. So far it is the same as every other visit with every other Doctor. Then he did something very different…he sat down! He didn’t stand up over me…he sat…

  • Status Migrainous, status migraine, migraine

    What is Status Migrainous?

    Saturday night I made that dreaded decision to go to the ER. My Hemiplegic Migraines were coming every 2-3 hours. Another words, as soon as I would get over one Migraine another one would hit. It is like riding a roller coaster that will not stop and let you off. In short… I was miserable, my body was tired, my brain was exhausted. I had used every rescue method in my “toolbox”…nothing helped. This phenomenon has an official medical name, Status Migrainous. Status Migrainous are the dreaded words that a lot of migraineurs don’t even know about. The basic definition is any Migraine that lasts more than 72 hours but a lot…

  • The Emergency Room Migraine Stigma - #migraine #chronicmigraine #health #healthcare #stigma

    I Am Not a Drug Seeker

    Do you want to know what it is like to be treated like a drug seeker? Go to the ER and tell them you have a migraine. Often times you are talked down too, disrespected, made to feel like you are a bother to everyone around you. They often give you strong narcotics in an IV and send you on your way because they think they have given you what you want. But those narcotics give you re-bound headaches so you are caught in a vicious cycle. The type Of Migraine that I have is rare. Approximately 20,000 in the US have this type of Migraine. What I have is…