• The simplest things have become the most difficult things. #selfcare #chronicillness

    When You Need a Nap After a Bath

    I used to love nothing more than soaking in a hot bubble bath. It was a way to relax and pamper myself. But it has now landed on the list of things that I used to do. Why? To start with, I can no longer use hot water. I had to get used to much cooler baths. If I make my bath a sauna like I used to I will get way too hot. When I get way too hot it triggers a Hemiplegic Migraine. The most frustrating part is that baths no longer relax me and they are no longer a way to pamper myself. Baths have to be…

  • Fear, afraid

    Sometimes I am Afraid

    There are a few things that is rarely talked about by people that battle migraines. One of the big ones is FEAR. Why fear? Well… I find the darkness of my dark, quiet room envelope me. The quietness is just too quiet and the darkness is just a little too dark. I know there is a world going on just outside the windows covered with the darkest curtains I could find. Darkness, pain and sickness…some days that is all I know. During these times there is always fear. It comes in many forms; anger, anxiety, quietness…but no matter how it comes out, it is fear. I am afraid of being…

  • Status Migrainous, status migraine, migraine

    What is Status Migrainous?

    Saturday night I made that dreaded decision to go to the ER. My Hemiplegic Migraines were coming every 2-3 hours. Another words, as soon as I would get over one Migraine another one would hit. It is like riding a roller coaster that will not stop and let you off. In short… I was miserable, my body was tired, my brain was exhausted. I had used every rescue method in my “toolbox”…nothing helped. This phenomenon has an official medical name, Status Migrainous. Status Migrainous are the dreaded words that a lot of migraineurs don’t even know about. The basic definition is any Migraine that lasts more than 72 hours but a lot…

  • Hangover, migraine

    It’s Migraine Hangover Day

    Once my feet hit the floor I realize that although my pain is gone, my body apparently didn't the memo that it is supposed to function correctly today. I try to remember why I was even getting out of bed...my brain just can't seem to hold my thoughts...it is hangover day!

  • Oh Please Go Away…

    I really try not to whine or complain on here because my goal for this blog is to educate and help others. BUT some days it is ok to not be ok. It is acceptable to say if you are having a hard time. It is perfectly fine to be vulnerable and show how you feel. I mean nobody can be an image of positivity 100% of the time, right? So, here goes… I have had a migraine off and on (more on than off) since the time change a week ago! Have you ever just wanted to sit on the floor and have a good old fashioned 2 year…

  • Migraine: Not Just a Bad Headache - Headache is only a symptom of a Migraine - #migraine #stigma #health #chronicillness #headache #symptoms

    Migraine: Not Just A Bad Headache

    If you have migraines of any type, you know that the second you say, “I had a migraine this weekend” that inevitably someone will say, “I get bad headaches and I just take a Tylenol and it goes away”.

  • When It Won’t Go Away - #migraine #chronicillness #pain

    When it Won’t Go Away

    Yesterday , I had one of those Hemiplegic Migraines that made me text my husband to come home from work. The pain was a 9 with spikes that were much worse. I couldn’t see out of my right eye, my right arm wouldn’t work and in trying to get my medication I dropped it. Fortunately, my oxygen was working properly. I laid there with my oxygen going, trying and failing to focus on breathing. Every pain spike left my body tensing up to the point that I couldn’t move most less breath. The more spikes I had the sicker I got. My sweet husband gave me my medicine and held…

  • Complain, migraine

    I Don’t Want to Complain

    I have been battling Hemiplegic Migraines for over 20 years. They were only two or three times a year until two years ago. For some reason, my episodes started coming multiple times a day and most every day. I don’t want this blog to become a place for me to complain but the negative aspect of migraine is part of the story. During the past two years I have had around 5 hospital stays, multiple ER visits, heart surgery and more medication changes than I could even try to list. I have changed my diet, gave up chocolate 😢 and tried really hard to cut down on caffeine (some what…

  • So, what exactly am I apologizing for? It’s not like I can help it. #guilt #chronicillness #migraine #mentalhealth

    Why I Apologize

    One of the first things I say after a Hemiplegic Migraine episode and I am actually able to put words together is “I’m Sorry”. And now that I have learned to sign, “I’m Sorry”, I say it before I even get my voice back. Why do I feel like I need to apologize? It’s not like I can help it. I am doing everything I can to get better management of my migraines. I apologize because there is nothing else to do and I apologize because my life feels like it is spinning out of control. The need to apologize may be because I had to cancel plans or I had…

  • The Trigger That Can’t Be Avoided

    I changed my diet to avoid the nitrates, MSG, CHOCOLATE and certain cheese that are triggers for my Hemiplegic Migraine. You know, those things that can keep me in the dark cave for the rest of the day. I have tried to learn new ways to handle stress and I have given myself permission to take naps and rest when needed. Of course, I take my medications just like I am supposed to and I follow my Doctors instructions to the best of my ability. I do absolutely everything I can to avoid the things that make life harder. There is just one trigger that I have not figured out…