• LETTER TO MY BRAIN - #migraine #hemiplegicmigraine #aphasia #aura #paralysis

    Letter to my Brain

    Last week, several people wrote letters to their brain. I made a comment on Jay’s post over at beardedigor.wordpress.com that I would be afraid of what I would say. He said I should do it…Challenge Accepted! Dear Brain, What On Earth is going on up there? For the many years you would act up on rare occasions but then you decided to be naughty every single day. It was bad enough when my the right side of my face would droop and my vision would get all sparkley. But when you decided that I didn’t need my right arm to work you went way over the line. Never mind the horrendous pain, which…

  • Strobe light, light sensitivity, migraine

    Strobe Light Concerns for Incredibles 2

    Disney Issues Alert after Blogger Posts Concerns on Twitter According to Variety Magazine, Disney issued an alert to moviegoers regarding Incredibles 2 having several scenes that may be harmful to people with photosensitivity. On Friday, Blogger Veronica Lewis posted tweets about these scenes, stating that the strobe light effects went on in several places and they were any where from 30 – 90 seconds each. In her tweets, Veronica says that the movie is “filled with tons of strobe/flashing lights…”. She also points out that people with epilepsy, migraines and other chronic illnesses are effected by strobe lights. Before Disney released its official statement on Saturday, many theaters were posting…

  • Food, trigger, migraine

    Eliminating Migraine Trigger Food

    Having Chronic Hemiplegic Migraine has taken a lot of things from me but none has been more frustrating than some of the food I can no longer eat. Figuring out food triggers is especially difficult because it is not easy to track. A migraine triggered by food may not happen for up to 48 hours after the food is consumed. Because of this, I made a decision to stop eating some of the major food that is known to trigger migraine. Here are a few of the foods that I have stopped eating: Hard Cheese Each variety of cheese is classified by 4 categories; Hard Cheese, Semi-hard Cheese, Semi-soft cheese…

  • Drive

    The Reason I Had to Stop Driving

    Simply put, I love to drive and at one time I considered myself adventurous. Not bungee jumping or mountain climbing adventurous but if I wanted to go somewhere there wasn’t much that could stop me. I had no fear about going somewhere by myself and was ready for a road trip any time. To me, driving equals freedom. The freedom to go to the store when I want, make appointments without feeling like a bother…the freedom to go places. Things are a lot different now. I stopped driving in November 2016 and other than a few short trips last August, I have not driven since. Why? For starters, the Hemiplegic Migraines (to…

  • 4 Challenges I Face Because of Hemiplegic Migraine

    Hemiplegic Migraine has handed me some challenges that sometimes feel like mountains that I cannot climb. Other struggles are not as dramatic or difficult to navigate but put stumbling blocks in my path. Here are some of the most prevalent challenges that I face the most:

  • Faith and Chronic Illness - #faith #Christianity #ChronicIllness #Healing

    My Journey of Faith and Chronic Illness

    When my health started to deteriorate two years ago, I was active in the pursuit of finding God within my struggle. I prayed through the worst of my pain, I read my Bible daily and I used Worship music to help strengthen my faith.  My relationship to God saw me through the days when my life was being shattered. As the journey of sickness continued, I lost my ability to be active within my church. I could no longer sing on the Praise Team. Not only because of the energy required but because the cognitive delays that resulted from Hemiplegic Migraine had made keeping rhythm and staying on key impossible.…

  • Things Only a Chronic Migraine Warrior Understands - #chronicmigraine #migraine #stigma #chronicillness

    6 Things Only a Chronic Migraine Warrior Understands

    I live a life in which I have a migraine almost every day. A diagnosis of Chronic Migraine requires that a person have at least 15 Migraine days a month and I blow that out of the water. All of this gives me an understanding that most people do not have about Migraine. Here are 6 things only a Chronic Migraine Warrior understands: You know it is not just a “bad” headache! In fact, you know that it is an excruciating headache that is debilitating to your entire body. Actually, you know that a Migraine isn’t a headache at all…the headache is only a symptom of the Migraine. All activities…

  • Sound, chronic illness, migraine,Hemiplegic Migraine, invisible illness

    I Sound too Good to be Sick

    When you have a chronic illness, many things are said to you that seriously make you scratch your head. I realize that the majority of people are well-meaning and are not meaning to hurt feelings or frustrate. They simply are not aware and are trying to help. Their heart is in the right place and you know it. There are those that provide suggestions for treatment that are actually meant to be divisive. Like they are somehow trying to “trip you up” to prove that you aren’t really that sick. These are the truly annoying ones that make you want to step onto your soapbox and shout to the world…

  • Phantom smells

    The Truth about Phantom Smells

    One of the Migraine symptoms that my husband and I are able to find humor in is my ability to smell the strangest things before a migraine. This phenomenon is called Phantosmia, Olfactory Hallucinations or in simple terms, phantom smells. Basically, it means smelling things that are not there. It sounds strange but it is actually fairly common for migraineurs to experience. This symptom is part of the Prodrome phase of a migraine (the phase before the migraine actually begins). If you are able to recognize them, they can be a warning sign for the looming Migraine. My most common smell is fresh baked Blueberry Muffins. No matter where I was…I would…

  • Brain fog, migraine

    The Truth about Brain Fog

    Everyone on Earth has those moments when you can’t grab the word for something or have times when you would forget your head if it wasn’t attached. But these are just fleeting moments…now imagine being that way a lot. This is called brain fog. Most people with Migraine and other chronic illnesses experience brain fog at some level and it is one of the most frustrating symptoms of my migraines. So, let’s start with a definition of brain fog: Brain fog isn’t a medical condition itself, but rather a symptom of other medical conditions. It’s a type of cognitive dysfunction involving memory problems, lack of mental clarity, poor concentration and…