• Why Shopping is not easy with a wheelchair - Displays, rude customers and other issues in stores make it very difficult to manuever. #Accessibility #Wheelchair #Disability #Christmas

    Why Holiday Shopping is not Easy with a Wheelchair

    I was able to go do some Christmas Shopping on Black Friday. It was wonderful to get out and to be around the hustle and bustle of holiday shopping. What made this excursion even better was that my sister and her family was down for a visit. What made this shopping trip difficult was that I decided to use my wheelchair so I would be able to have energy to enjoy it. I wrote before in Why I Hesitate to Use My Mobility Devices, about how I struggle with using my wheelchair. This outing was a reminder of why shopping is not easy with a wheelchair. Why Shopping is not Easy…

  • Status Migrainosus is a migraine that lasts 72 hours or more and can be a serious medical emergency that can cause a stroke. #MigraineStatus #StatusMigrainous #StatusMigrainosus #IntractableMigraine

    Migraine Explained: Status Migrainosus

    If you have Chronic Migraine, you have probably heard the words, Status Migrainosus or Status Migraine. They are the most dreaded words in the Migraine community. Other words doctors use is Intractable Migraine and in very basic terms means the migraine will not go away. There is much more to know about Status Migrainosus because it doesn’t always present in the same ways for everyone. When Does it Become Status Migrainosus? To get diagnosed the migraine must have last for at least 72 hours but that doesn’t have to be consecutive. Another words, medications may provide relief but it is temporary. The migraine will return as soon as the medication…

  • Lights, music, smells and large gatherings all create opportunities for Sensory Overload. Here are 6 ways to avoid sensory overload during the holidays. #Christmas #Holidays #ChronicIllness

    6 Ways to Avoid Sensory Overload During the Holidays

    Many types of Chronic Illnesses are affected by sensory overload. It can make symptoms worse and make treatments inadequate. But what is Sensory Overload? It occurs when one or more of the body’s senses experiences over-stimulation from the environment around them. Too much noise in itself may not be enough to tip the scales but if bright lights are also there the brain can be impacted. For me, too many sensory factors at one time can trigger significantly worse than normal Hemiplegic Migraines. A public place with fluorescent lighting, loud noise and strong smells is a definite recipe for a severe Hemiplegic Migraine. Unfortunately, the holiday season is full of crowded rooms, music, smells and…

  • Chronic Hemiplegic Migraine: A Migraine that produces temporary stroke like symptoms. #hemiplegicmigraine #migraine

    Chronic Hemiplegic Migraine Defined

    I blog about my journey with Chronic Hemiplegic Migraine. Most people hear the words but hang on to the word Migraine at the end and think, “she has a headache”. The vast majority, including medical professionals, never stop to think about the implications of the two words I said before the word Migraine.  So, I want to break down what they words mean and then discuss how it is much more than having a headache. What Does Chronic Mean? According to Medicine.net, the medical definition for chronic is: A chronic condition is one that lasts 3 months or more. Chronic diseases are in contrast to those that are acute (abrupt,…

  • An Aura is a part of the Prodrome Phase (pre-migraine) of a Migraine. It can include Visual, Sensory and Language Auras. - #migraine #aura #migraineAura #visualaura #sensoryaura #dysphasicaura #transientaphasia #chronicmigraine #hemiplegicmigraine

    Migraine Explained: What is an Aura?

    An Aura is a part of the Prodrome Phase (pre-migraine) of a Migraine. These are symptoms that include the most common visual aura can also include sensory and language disturbances. I want to look deeper into what these symptoms are and what they might also be warning you of. What is a Visual Aura? According to Mayo.com, a visual aura is: an electrical or chemical wave that moves across the visual cortex of your brain. The best known visual aura is called a fortification spectrum because its pattern resembles the walls of a medieval fort. It may start as a small hole of light or sometimes as bright geometrical lines…

  • What is Transient Aphasia? - #speech #language #aphasia #migraine #aura #HemiplegicMigraine #garbledspeech

    Transient Aphasia – When the Words Won’t Come

    One of the most annoying symptoms that I have during my Hemiplegic Migraine episodes is aphasia. The National Aphasia Association defines aphasia as, “an impairment of language, affecting the production or comprehension of speech.”  Although aphasia is generally permanent, transient aphasia is temporary and is the type that accompanies migraines. What is it like to have Transient Aphasia? Most importantly, I know what I want to say but when I try to say the words everything sounds garbled, slurred and unrecognizable. It sounds like I am talking a foreign language that doesn’t exist. It is very frustrating to have the words and to be unable to get them out correctly.…

  • Why I Hesitate to use my Mobility Devices - #disability #mobility #wheelchair #chronicillness

    Why I Hesitate to Use My Mobility Devices

    Over the past couple of years, my ability to walk long distances had decreased drastically. Very little activity will leave me exhausted and sweating profusely. I made a decision to get two different types of mobility devices so I can get out of the house for longer periods of time. There is just one problem, I am hesitant to use them. I guess I have to admit here that pride is one of the reasons that I am not eager to use my wheelchair and my Rollator. It is obvious that I worry way too much about what people are going to think. I do need them because when I…

  • It was a win because the team won and because I made it through the entire game. It was a defeat because doing so pushed my body well beyond its limits. - #boundaries #health #chronicillness #hemiplegicmigraine #football

    When a Win Feels Like a Defeat

    Last Friday night, my step-grandson was playing in the first varsity football 🏈 game of the season. I really wanted to go because I had missed the entire season last year. I wanted to see him help his team get the win! Right from the start, I knew this was going to be an up hill battle because of the heat and humidity. My husband and I talked through every possible scenario and planned for each of them. We planned for the worst possibility which would be having a full blown Hemiplegic Migraine at the game. Planning this was made more difficult because we didn’t know how far the parking was…

  • 4 Ways to Discover an Attitude of Gratitude - #selfcare #mentalhealth #chronicillness #attitude

    4 Ways to Discover an Attitude of Gratitude

    It can be difficult to feel grateful when you live with chronic illness. Sickness, fatigue and fear can make it easy to become more resentful and less grateful. It is important to find things in life to be grateful for, in spite of living with chronic illness. It may take practice but you can discover an attitude of gratitude that will change even the worst of days. 4 Ways to Discover an Attitude of Gratitude: Don’t just look at the obvious things. It is only human nature to look for the most obvious things to be grateful for. It is easy to be grateful for shelter when you have a home, for food when the…

  • “Nevertheless, She Persisted - #chronicillness #perserverence #facingadversity #migraine

    “Nevertheless, She Persisted” – My Weekend Mantra

    The weekend wasn’t  a complete bust but it wasn’t a total success either. What I can say is that I did my best and no matter what happened, I persisted! I didn’t stop trying. Over the past few weeks, the weather has been rough. High humidity, High temperatures, storms and the barometric pressure changes have really taken a toll on me. These are all migraine triggers for me and there is nothing I can do about them…except push through. I woke up on Saturday morning around 5 am with a Hemiplegic Migraine that fortunately responded well to my medication and I slept for a few hours more. When I woke…