• Unless you live with Chronic Illness, it is hard to understand what it is like. - #ChronicIllness #Health

    5 Things Healthy People Don’t Understand about Chronic Illness

    I remember being healthy and I remember being active in life. I enjoyed singing on the praise team, running my own virtual assistant business and nights out with my husband. My life was full, happy and I felt like I was finally happy in life. I can say now that I took my ability to be active completely for granted. Now, as I sit here getting ready to pack for a weekend trip, I realize what healthy people don’t understand about Chronic Illness. 5 Things Healthy People Don’t Understand How do I know what healthy people don’t understand? Because I was once one of them. I can’t do anything spontaneously…

  • Using these Holiday Self Care tips, you will have a happier holiday season with less stress. #AChronicVoice #Holidays #SelfCare

    5 Tips for Holiday Self Care

    It is hard to believe that it is already time for the December Link Up from A Chronic Voice. This year has gone by so fast and I am quickly approaching the one year anniversary of The Frozen Mind. For this link up, I want to talk about the Struggle of the Holidays. The holiday season is so busy and the to do list seems to get longer by the day. This month’s prompts are perfect for talking about Holiday Self Care. First, let me tell you a little about the Link Up. Each month, there are 5 word prompts given and you have to use at least 3 of them in…

  • Why Shopping is not easy with a wheelchair - Displays, rude customers and other issues in stores make it very difficult to manuever. #Accessibility #Wheelchair #Disability #Christmas

    Why Holiday Shopping is not Easy with a Wheelchair

    I was able to go do some Christmas Shopping on Black Friday. It was wonderful to get out and to be around the hustle and bustle of holiday shopping. What made this excursion even better was that my sister and her family was down for a visit. What made this shopping trip difficult was that I decided to use my wheelchair so I would be able to have energy to enjoy it. I wrote before in Why I Hesitate to Use My Mobility Devices, about how I struggle with using my wheelchair. This outing was a reminder of why shopping is not easy with a wheelchair. Why Shopping is not Easy…

  • Lights, music, smells and large gatherings all create opportunities for Sensory Overload. Here are 6 ways to avoid sensory overload during the holidays. #Christmas #Holidays #ChronicIllness

    6 Ways to Avoid Sensory Overload During the Holidays

    Many types of Chronic Illnesses are affected by sensory overload. It can make symptoms worse and make treatments inadequate. But what is Sensory Overload? It occurs when one or more of the body’s senses experiences over-stimulation from the environment around them. Too much noise in itself may not be enough to tip the scales but if bright lights are also there the brain can be impacted. For me, too many sensory factors at one time can trigger significantly worse than normal Hemiplegic Migraines. A public place with fluorescent lighting, loud noise and strong smells is a definite recipe for a severe Hemiplegic Migraine. Unfortunately, the holiday season is full of crowded rooms, music, smells and…

  • Sometimes Family Gatherings during the Holidays do not go as smooth as they should. If you have a Chronic Illness the hard conversations inevitably will come. Here are 5 of the more common ones and how to avoid the. - #Christmas #ChronicIllness

    5 Hard Conversations to Avoid During the Holidays

    Everyone has that one person at their holiday gatherings that has no tact or asks rude questions. This is probably even more noticeable to people that have a chronic illness. We are used to having  hard conversations with those relatives that just don’t know how to keep their opinions to themselves. What Hard Conversations? “Well you don’t look sick” – This is one of the most inconsiderate statements that someone can make to someone that is chronically ill. Most chronic illnesses can’t be seen on the outside and are considered, “invisible Illness”. HOw I look doesn’t determine how I feel on the vast majority of days. “Shouldn’t you Try a New…

  • Chronic Hemiplegic Migraine: A Migraine that produces temporary stroke like symptoms. #hemiplegicmigraine #migraine

    Chronic Hemiplegic Migraine Defined

    I blog about my journey with Chronic Hemiplegic Migraine. Most people hear the words but hang on to the word Migraine at the end and think, “she has a headache”. The vast majority, including medical professionals, never stop to think about the implications of the two words I said before the word Migraine.  So, I want to break down what they words mean and then discuss how it is much more than having a headache. What Does Chronic Mean? According to Medicine.net, the medical definition for chronic is: A chronic condition is one that lasts 3 months or more. Chronic diseases are in contrast to those that are acute (abrupt,…

  • 10 Gifts to Give Someone with Chronic Illness - Gifts that will pamper and help someone with chronic illness. This list includes blankets, massagers and more! #giftguide #Christmas

    10 Thoughtful Gifts for Someone with Chronic Illness

    Chances are, there is someone on your list that has a Chronic Illness. You probably would like to give them something that will offer some them some comfort or that will be useful.  Here are some thoughtful gifts for someone with chronic illness that any “spoonie” will love. These gifts will also be great for that person on your list that likes to be pampered as well! 10 Thoughtful Gifts for Someone with Chronic Illness:  1. Trigger Point Therapy Self Massage Tool Designed to aid anyone, whether suffering from chronic pain or just looking for stress relief. Our tool boasts 11 perfectly placed therapy knobs that offer you easy access to your…

  • What is Transient Aphasia? - #speech #language #aphasia #migraine #aura #HemiplegicMigraine #garbledspeech

    Transient Aphasia – When the Words Won’t Come

    One of the most annoying symptoms that I have during my Hemiplegic Migraine episodes is aphasia. The National Aphasia Association defines aphasia as, “an impairment of language, affecting the production or comprehension of speech.”  Although aphasia is generally permanent, transient aphasia is temporary and is the type that accompanies migraines. What is it like to have Transient Aphasia? Most importantly, I know what I want to say but when I try to say the words everything sounds garbled, slurred and unrecognizable. It sounds like I am talking a foreign language that doesn’t exist. It is very frustrating to have the words and to be unable to get them out correctly.…

  • October Link Up Party with A Chronic Voice - #Budgeting #Slowing #Escaping #writingprompts #chronicillness #blogtober

    October Link Up with A Chronic Voice

    My how time does fly by! It is already October and this is my 3rd month taking part in the Link Up Party at A Chronic Voice. I enjoy this Link Up because it includes writing prompts and that makes it a challenge.  The October Link Up prompts look particularly challenging so I am a little worried about how it might turn out. This is how the Link Up works. Every month a new Prompt is posted on the Link Up Page on A Chronic Voice. Each month there are 5 prompts listed and you must write something about at least 3 of them in the post. Then you submit…

  • Use these tips to pamper yourself on days that you don't feel well. - #chronicillness #selfcare #pampering #pamper

    4 Ways to Pamper Yourself When You Don’t Feel Well

    Why Pamper Yourself? As I am writing this, Hurricane Florence has been pounding the North Carolina coast for 24 hours and is starting to slowly start her journey south toward me. All of the models show very little likelihood that it will make it here and for that I am incredibly grateful. That doesn’t exactly mean that I am completely “out of the woods” so to speak. The Barometric Pressure started dropping around 3 am and has continued to drop significantly through out the day. I have had a hemiplegic migraine that morphed into a nasty headache with nausea and all over joint pain. I feel like I need to…