Chronic Illness Spotlight: Familial Adenomatous Polyposis
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. In the last edition of Chronic Illness Spotlight, we learned about Arnold Chiari Malformation. In today’s edition we will learn about Familial Adenomatous Polyposis and will feature Jenny Jones What is Familial Adenomatous Polyposis? According the the U.S. Library of Medicine, “Familial Adenomatous Polyposis (FAP) is an inherited disorder characterized by cancer of the large intestine (colon) and rectum.” A person with Familial Adenomatous Polyposis can have hundreds of polyps in their colon and is usually present in the teenage years. If not treated, these polyps…
Chronic Illness Spotlight: Arnold Chiari Malformation
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. In the last edition of Chronic Illness Spotlight, we learned about Crohn’s Disease. In today’s edition we will learn about Arnold Chiari Malformation and will feature Zosha Faith.
Chronic Illness Spotlight: Crohn’s Disease
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. Today we will spotlight a Chronic Illness called Crohn’s Disease with featured guest, Kelly Rulle
Chronic Illness Spotlight: Systemic Lupus
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. Today’s post will spotlight a Chronic Illness called Systemic Lupus. What is Systemic Lupus? Also known as Systemic Lupus Erythematosus or SLE, is a chronic illness that causes systemic inflammation throughout the body. According the American College of Rheumatology, “In addition to affecting the skin and joints, it can affect other organs in the body such as the kidneys, the tissue lining the lungs (pleura), heart (pericardium), and brain.”
Chronic Illness Spotlight: Atypical Bilateral Trigeminal Neuralgia
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. Today’s post will spotlight a Chronic Illness called Atypical Bilateral Trigeminal Neuralgia. Atypical Bilateral Trigeminal Neuralgia is a rare type of Trigeminal Neuralgia causes severe nerve pain on both sides of the face. Simple things like brushing your teeth or putting on makeup can cause excruciating facial pain. Meet Savanna! Savanna loves to crochet, cuddling with her cat, reading and music. She is also a fierce Chronic Illness Warrior! She has several other chronic illnesses. The include IBS, Arthritis, Neurological Deficiency Syndrome, Fibromyalgia, PTSD, MDD and…
Chronic Illness Spotlight: Myalgic Encephalomyelitis & Fibromyalgia
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. Today’s post will spotlight a Chronic Illness called Myalgic Encephalomyelitis (ME/CFS) and Fibromyalgia. Myalgic Encephalomyelitis causes extreme fatigue, muscle and joint pain, severe headaches and more. Fibromyalgia is an illness that causes widespread chronic pain, joint stiffness and insomnia. Meet Shan! Today’s Chronic Illness Warrior is Shan Ellis. She is a mom, blogger and she lives in Wales. I have a passion for Wales, my home, my kids, stationary and books, Slimming World meals, cheap weekends out, beer and craft gin, renovating my dilapidated house, and…
Chronic Illness Spotlight: Ehlers Danlos Syndrome
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a Chronic Illness Warrior that lives with the illness is featured. Today’s post will spotlight a Chronic Illness called Ehlers Danlos Syndrome (EDS) and Dysautonomia. Ehlers Danlos Syndrome causes hypermobility of joints as well as other problems. Dysautonomia is an illness that impacts the Autonomic Nervous System. Today’s featured Chronic Illness Warrior is Fern. She has a Masters Degree in Anthropology and she lives in Scotland. Just by reading her social media profiles you can tell that she has a great personality as she has named her wheelchair Rollo! She is also an avid bookworm and loves…
Chronic Illness Spotlight: Rare Bone Disease & More
Chronic Illness Spotlight is a series in which different illnesses are highlighted and a person that lives with the illness is featured. Today’s post will spotlight a rare Bone Disease. It is so rare that it hasn’t been given a name! Meet Sam Moss of My Medical Musings, Sam has several Chronic Illnesses, one that is so rare that it hasn’t been named yet. She also has Rheumatoid Arthritis, Sjogrens Syndrome, Trigeminal Neuralgia, a permanent Colostomy due to a severe rectal prolapse and a few other bits and pieces. Sam is an advocate for others that have Chronic Illness and runs an active Chronic Illness Facebook Group. This Group is…
Chronic Illness Spotlight: Familial Mediterranean Fever
Chronic Illness Spotlight is a new series in which different illnesses are highlighted and a patient that lives with the illness is featured. Today’s post will spotlight a rare Chronic Illness called Familial Mediterranean Fever (FMF). Familial Mediterranean Fever Meet Ashley Marie, she is recently engaged so congratulations are definitely in order! Ashley Marie has two Chronic Illnesses, one is called Familial Mediterranean Fever (FMF) and the other is Behcet’s Disease. Today, we will be focusing on FMF. If you would like to learn more about Behcet’s Disease, visit the American Behcet’s Disease Association. Here is the interview with Ashley Marie. Briefly explain your illness FMF is a rare autoinflammatory disorder that…
