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Month: May 2018

My Journey of Faith and Chronic Illness

My Journey of Faith and Chronic Illness

When my health started to deteriorate two years ago, I was active in the pursuit of finding God within my struggle. I prayed through the worst of my pain, I read my Bible daily and I used Worship music to help strengthen my faith.  My relationship to God saw me through the days when my life was being shattered. As the journey of sickness continued, I lost my ability to be active within my church. I could no longer sing…

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All We Can Do Is Remember

All We Can Do Is Remember

“It is, in a way, an odd thing to honor those who died in defense of our country, in defense of us, in wars far away. The imagination plays a trick. We see these soldiers in our mind as old and wise. We see them as something like the Founding Fathers, grave and gray haired. But most of them were boys when they died, and they gave up two lives — the one they were living and the one they…

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Tapering off of Lamictal – Part 2

Tapering off of Lamictal – Part 2

A few weeks ago, I posted Part 1 of a two part series about Tapering Off of Lamictal. Lamictal is the first of two seizure medications that I am tapering off of. Since Part 1 posted, I continued to decrease by 50 mg every 5 days. Each decrease included the same eye pain and extreme light sensitivity but that start decreasing in duration. The nausea was no longer a real factor and the joint pain and aches had subsided. After the…

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6 Things Only a Chronic Migraine Warrior Understands

6 Things Only a Chronic Migraine Warrior Understands

I live a life in which I have a migraine almost every day. A diagnosis of Chronic Migraine requires that a person have at least 15 Migraine days a month and I blow that out of the water. All of this gives me an understanding that most people do not have about Migraine. Here are 6 things only a Chronic Migraine Warrior understands: You know it is not just a “bad” headache! In fact, you know that it is an…

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The Guilt of Chronic Illness

The Guilt of Chronic Illness

Since I’ve been battling daily Hemiplegic Migraine, I’ve had overwhelming feelings of guilt about loads of things. Guilt about not doing things, letting people down, not living up to expectations, not being able to join in with events, having to cancel plans at the last minute, not being able to be depended on, not being a good wife, parent, daughter, sister, friend… Sometimes the guilt feels like a storm cloud that envelops me in its clutches. Breaking free just seems…

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Allodynia & Migraine …

Allodynia & Migraine …

One day, while having a Hemiplegic Migraine, my husband was trying really hard to help me get comfortable. This is no easy task since I have no use of my right arm and I can’t talk during the episodes. So, I was getting really frustrated because I couldn’t get him to understand that something was making my feet and legs hurt. It wasn’t long before he was frustrated too…I mean he felt really bad that nothing he was doing was…

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New Chronic Migraine Treatment Approved by FDA …

New Chronic Migraine Treatment Approved by FDA …

Yesterday, the FDA approved a new drug called Aimovig. It the first medication designed specifically to prevent migraines. Until now, the only preventative treatments were medications that are actually for something else, mostly High Blood Pressure and Epilepsy. A lot of people are not helped with these medications and are left with few options…I am in this category. According to Migraine.com, Aimovig is a “…calcitonin-gene-related peptide (CGRP) blocker. CGRP is a newly identified protein that acts like a neurotransmitter (a…

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The Positive Side of Chronic Illness

The Positive Side of Chronic Illness

It is very easy to list out the negatives of having a chronic illness. The obvious ones may be high medical costs, lack of social life, not being able to participate in family functions and the list could go on and on. Sometimes it is a good idea to think about the positive side as well. It sounds kind of silly but there are indeed positive things to be learned and experienced because of chronic illness. Empathy- This is probably…

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Book Review: Coming Home by Rosamund Pilcher

Book Review: Coming Home by Rosamund Pilcher

Because of my migraines, I find that I am often not able to read books. I have learned to thoroughly enjoy Audiobooks from Audible. I can play them at a comfortable volume and it helps distract me through my pain. So, I have decided to include an occasional, short book review on my blog to share my love of audio books.) Coming Home by Rosamund Pilcher Narrated by: Helen Johns Length: 40 hours and 36 minutes First thing about this…

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I Sound too Good to be Sick

I Sound too Good to be Sick

When you have a chronic illness, many things are said to you that seriously make you scratch your head. I realize that the majority of people are well-meaning and are not meaning to hurt feelings or frustrate. They simply are not aware and are trying to help. Their heart is in the right place and you know it. There are those that provide suggestions for treatment that are actually meant to be divisive. Like they are somehow trying to “trip…

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