• Faith and Chronic Illness - #faith #Christianity #ChronicIllness #Healing

    My Journey of Faith and Chronic Illness

    When my health started to deteriorate two years ago, I was active in the pursuit of finding God within my struggle. I prayed through the worst of my pain, I read my Bible daily and I used Worship music to help strengthen my faith.  My relationship to God saw me through the days when my life was being shattered. As the journey of sickness continued, I lost my ability to be active within my church. I could no longer sing on the Praise Team. Not only because of the energy required but because the cognitive delays that resulted from Hemiplegic Migraine had made keeping rhythm and staying on key impossible.…

  • All We Can Do Is Remember

    “It is, in a way, an odd thing to honor those who died in defense of our country, in defense of us, in wars far away. The imagination plays a trick. We see these soldiers in our mind as old and wise. We see them as something like the Founding Fathers, grave and gray haired. But most of them were boys when they died, and they gave up two lives — the one they were living and the one they would have lived. When they died, they gave up their chance to be husbands and fathers and grandfathers. They gave up their chance to be revered old men. They gave…

  • Tapering off of Lamictal – Part 2

    A few weeks ago, I posted Part 1 of a two part series about Tapering Off of Lamictal. Lamictal is the first of two seizure medications that I am tapering off of. Since Part 1 posted, I continued to decrease by 50 mg every 5 days. Each decrease included the same eye pain and extreme light sensitivity but that start decreasing in duration. The nausea was no longer a real factor and the joint pain and aches had subsided. After the drop down in which I took no Lamictal in the morning, I only had the eye pain for 1 day. Then I started having trouble sleeping. It was like my…

  • Things Only a Chronic Migraine Warrior Understands - #chronicmigraine #migraine #stigma #chronicillness

    6 Things Only a Chronic Migraine Warrior Understands

    I live a life in which I have a migraine almost every day. A diagnosis of Chronic Migraine requires that a person have at least 15 Migraine days a month and I blow that out of the water. All of this gives me an understanding that most people do not have about Migraine. Here are 6 things only a Chronic Migraine Warrior understands: You know it is not just a “bad” headache! In fact, you know that it is an excruciating headache that is debilitating to your entire body. Actually, you know that a Migraine isn’t a headache at all…the headache is only a symptom of the Migraine. All activities…

  • The Guilt of Chronic Illness - #chronicillness #guilt #mentalhealth

    The Guilt of Chronic Illness

    Since I’ve been battling daily Hemiplegic Migraine, I’ve had overwhelming feelings of guilt about loads of things. Guilt about not doing things, letting people down, not living up to expectations, not being able to join in with events, having to cancel plans at the last minute, not being able to be depended on, not being a good wife, parent, daughter, sister, friend… Sometimes the guilt feels like a storm cloud that envelops me in its clutches. Breaking free just seems like an impossibility because I don’t know how to be the new me. Before my health declined, I was outgoing, sang on the Praise team and was very active at…

  • New Chronic Migraine Treatment Approved by FDA …

    Yesterday, the FDA approved a new drug called Aimovig. It the first medication designed specifically to prevent migraines. Until now, the only preventative treatments were medications that are actually for something else, mostly High Blood Pressure and Epilepsy. A lot of people are not helped with these medications and are left with few options…I am in this category. According to Migraine.com, Aimovig is a “…calcitonin-gene-related peptide (CGRP) blocker. CGRP is a newly identified protein that acts like a neurotransmitter (a chemical messenger) throughout the brain and body. It is a monoclonal antibody that targets and neutralizes the CGRP receptors. By not allowing CGRP to connect with its receptors it helps…

  • The Positive Side of Chronic Illness

    It is very easy to list out the negatives of having a chronic illness. The obvious ones may be high medical costs, lack of social life, not being able to participate in family functions and the list could go on and on. Sometimes it is a good idea to think about the positive side as well. It sounds kind of silly but there are indeed positive things to be learned and experienced because of chronic illness. Empathy- This is probably the one that I have learned the most about. A lot of people have no clue what to say to someone that is struggling with a life-altering chronic illness much…

  • Book review, audiobook

    Book Review: Coming Home by Rosamund Pilcher

    Because of my migraines, I find that I am often not able to read books. I have learned to thoroughly enjoy Audiobooks from Audible. I can play them at a comfortable volume and it helps distract me through my pain. So, I have decided to include an occasional, short book review on my blog to share my love of audio books.) Coming Home by Rosamund Pilcher Narrated by: Helen Johns Length: 40 hours and 36 minutes First thing about this book is that it drew me in before the first chapter was over! The narrator is AMAZING and her accent is divine! This an endearing story set in the backdrop…

  • Sound, chronic illness, migraine,Hemiplegic Migraine, invisible illness

    I Sound too Good to be Sick

    When you have a chronic illness, many things are said to you that seriously make you scratch your head. I realize that the majority of people are well-meaning and are not meaning to hurt feelings or frustrate. They simply are not aware and are trying to help. Their heart is in the right place and you know it. There are those that provide suggestions for treatment that are actually meant to be divisive. Like they are somehow trying to “trip you up” to prove that you aren’t really that sick. These are the truly annoying ones that make you want to step onto your soapbox and shout to the world…

  • Phantom smells

    The Truth about Phantom Smells

    One of the Migraine symptoms that my husband and I are able to find humor in is my ability to smell the strangest things before a migraine. This phenomenon is called Phantosmia, Olfactory Hallucinations or in simple terms, phantom smells. Basically, it means smelling things that are not there. It sounds strange but it is actually fairly common for migraineurs to experience. This symptom is part of the Prodrome phase of a migraine (the phase before the migraine actually begins). If you are able to recognize them, they can be a warning sign for the looming Migraine. My most common smell is fresh baked Blueberry Muffins. No matter where I was…I would…