• Doctor, enemy, chronic illness, healthcare

    Are Doctors Your Enemy?

    I am sitting in a Doctor’s office and I am dreading this appointment with yet another Doctor. Honestly, I am already frustrated. All of the Doctors before this one were cold, uncaring and didn’t take me seriously and I know that this one will be the same…because they are all trained the same way, right? I had even had one Neurologist tell me, “it is a headache; get over it”. This Doctor walked in, introduced himself then he shook my hand. So far it is the same as every other visit with every other Doctor. Then he did something very different…he sat down! He didn’t stand up over me…he sat…

  • Fear, afraid

    Sometimes I am Afraid

    There are a few things that is rarely talked about by people that battle migraines. One of the big ones is FEAR. Why fear? Well… I find the darkness of my dark, quiet room envelope me. The quietness is just too quiet and the darkness is just a little too dark. I know there is a world going on just outside the windows covered with the darkest curtains I could find. Darkness, pain and sickness…some days that is all I know. During these times there is always fear. It comes in many forms; anger, anxiety, quietness…but no matter how it comes out, it is fear. I am afraid of being…

  • Status Migrainous, status migraine, migraine

    What is Status Migrainous?

    Saturday night I made that dreaded decision to go to the ER. My Hemiplegic Migraines were coming every 2-3 hours. Another words, as soon as I would get over one Migraine another one would hit. It is like riding a roller coaster that will not stop and let you off. In short… I was miserable, my body was tired, my brain was exhausted. I had used every rescue method in my “toolbox”…nothing helped. This phenomenon has an official medical name, Status Migrainous. Status Migrainous are the dreaded words that a lot of migraineurs don’t even know about. The basic definition is any Migraine that lasts more than 72 hours but a lot…

  • Hangover, migraine

    It’s Migraine Hangover Day

    Once my feet hit the floor I realize that although my pain is gone, my body apparently didn't the memo that it is supposed to function correctly today. I try to remember why I was even getting out of bed...my brain just can't seem to hold my thoughts...it is hangover day!

  • Oh Please Go Away…

    I really try not to whine or complain on here because my goal for this blog is to educate and help others. BUT some days it is ok to not be ok. It is acceptable to say if you are having a hard time. It is perfectly fine to be vulnerable and show how you feel. I mean nobody can be an image of positivity 100% of the time, right? So, here goes… I have had a migraine off and on (more on than off) since the time change a week ago! Have you ever just wanted to sit on the floor and have a good old fashioned 2 year…

  • Migraine: Not Just a Bad Headache - Headache is only a symptom of a Migraine - #migraine #stigma #health #chronicillness #headache #symptoms

    Migraine: Not Just A Bad Headache

    If you have migraines of any type, you know that the second you say, “I had a migraine this weekend” that inevitably someone will say, “I get bad headaches and I just take a Tylenol and it goes away”.

  • When It Won’t Go Away - #migraine #chronicillness #pain

    When it Won’t Go Away

    Yesterday , I had one of those Hemiplegic Migraines that made me text my husband to come home from work. The pain was a 9 with spikes that were much worse. I couldn’t see out of my right eye, my right arm wouldn’t work and in trying to get my medication I dropped it. Fortunately, my oxygen was working properly. I laid there with my oxygen going, trying and failing to focus on breathing. Every pain spike left my body tensing up to the point that I couldn’t move most less breath. The more spikes I had the sicker I got. My sweet husband gave me my medicine and held…

  • Complain, migraine

    I Don’t Want to Complain

    I have been battling Hemiplegic Migraines for over 20 years. They were only two or three times a year until two years ago. For some reason, my episodes started coming multiple times a day and most every day. I don’t want this blog to become a place for me to complain but the negative aspect of migraine is part of the story. During the past two years I have had around 5 hospital stays, multiple ER visits, heart surgery and more medication changes than I could even try to list. I have changed my diet, gave up chocolate 😢 and tried really hard to cut down on caffeine (some what…

  • Circaidian MIgraine is very real! - #migraine #daylightsavingstime #seasonalmigraine

    Why Daylight Savings Time is a Pain (…literally)

    While many people are excited about the Daylight Savings time change that brings longer days and warmer days, I am not among them. My Doctor from the Mayo Clinic says that my Hemiplegic Migraine react to circadian rhythms. Well, what is a circadian rhythm? The “body clock,” is a cycle that tells our bodies when to sleep, rise, eat—it regulates many physiological and neurological processes. So what does this mean for me? It means that one hour of sleep that everyone is loosing can send my “migraine brain” into a tailspin. It can mean an increase of number and/or increase of intensity. Sounds lovely, doesn’t it? This change in time does not just…

  • Tired, exhaution

    My Tired is Tired

    We have all heard the saying, “My get up and go, got up and went”. What if you didn’t have any get up and go to start with? It left so long ago that you don’t remember having it and you most certainly don’t remember it leaving! I also have no clue where it went or how to find it. Most people battling a chronic illness also have extreme fatigue. Fatigue is so much more than just being exhausted. Fatigue will never be cured with an afternoon nap or a good nights sleep because you wake up just as tired as you went to bed…no matter how well you sleep.…