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Month: February 2018

The Trigger That Can’t Be Avoided

The Trigger That Can’t Be Avoided

I changed my diet to avoid the nitrates, MSG, CHOCOLATE and certain cheese that are triggers for my Hemiplegic Migraine. You know, those things that can keep me in the dark cave for the rest of the day. I have tried to learn new ways to handle stress and I have given myself permission to take naps and rest when needed. Of course, I take my medications just like I am supposed to and I follow my Doctors instructions to…

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One Day I Won’t Cancel

One Day I Won’t Cancel

Your friends invite you for dinner and game night…you are so excited about it. You plan you day around it. You make sure to save your energy, so this time you won’t have to cancel like many times before. It is going to feel so good to get out of the house. It is going to feel amazing to be a part of something. But then it all gets ripped away. It all starts by that bright light in your…

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Taking Off the Mask

Taking Off the Mask

I, like most people with a chronic illness, am really good at hiding how I feel. I wear a mask, a facade. If you ask me how I am doing, I will probably say okay or fine. I want desperately to be normal…to have normal days with normal ups and downs. The mask is there just so I can “feel” like everyone else. I don’t want to be the Debbie Downer that is always talking about her illness. You see,…

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I Am Not a Drug Seeker

I Am Not a Drug Seeker

Do you want to know what it is like to be treated like a drug seeker? Go to the ER and tell them you have a migraine. Often times you are talked down too, disrespected, made to feel like you are a bother to everyone around you. They often give you strong narcotics in an IV and send you on your way because they think they have given you what you want. But those narcotics give you re-bound headaches so…

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Hard Week and Frustration

Hard Week and Frustration

Honestly, this has been a hard week. I had a reaction to one of my medications. It just so happens to be the one that keeps the fluid pressure from building up around my brain. My right eye was swollen, my kidneys were not functioning well and I had absolutely no appetite at all! So My Doctor had me go off the medication immediately instead of his normal taper off schedule. Let me just tell you that as the week has…

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Life is too Short

Life is too Short

This past November my best friend passed away after a long fight with breast cancer. The thing is that for all but her last 2 weeks you wouldn’t have known she was sick. She really did live her life on her on terms and fought the good fight. Her passing really threw me off kilter. Yes, she had stage 4 breast cancer for 3 years but she wasn’t sick the majority of that time. She came home with Hospice on…

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In Sickness and in Health

In Sickness and in Health

Let’s think about those words for just a minute. “In Sickness and in Health “, they were probably the easiest words to say. Sort of stuck in between “for richer or poorer” and “Til death do us part”. They seem like the easiest of the three. Especially since we live in a society where nothing bad is ever going to happen. But now let’s think about the reality of those words. “In sickness and in Health” means that diagnosis that…

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