• The Trigger That Can’t Be Avoided

    I changed my diet to avoid the nitrates, MSG, CHOCOLATE and certain cheese that are triggers for my Hemiplegic Migraine. You know, those things that can keep me in the dark cave for the rest of the day. I have tried to learn new ways to handle stress and I…

  • How Chronic Illness Ruins Plans & Friendships - #schedule #chronicillness #chronicmigraine #plans #cancel #friendship

    One Day I Won’t Cancel

    How Chronic Illness Ruins Friendships Your friends invite you for dinner and game night…you are so excited about it. You plan you day around it. You make sure to save your energy, so this time you won’t have to cancel like many times before. It is going to feel so…

  • Mask, chronic illness, migraine,Hemiplegic Migraine

    Taking Off the Mask

    I, like most people with a chronic illness, am really good at hiding how I feel. I wear a mask, a facade. If you ask me how I am doing, I will probably say okay or fine. I want desperately to be normal…to have normal days with normal ups and…

  • The Emergency Room Migraine Stigma - #migraine #chronicmigraine #health #healthcare #stigma

    I Am Not a Drug Seeker

    Do you want to know what it is like to be treated like a drug seeker? Go to the ER and tell them you have a migraine. Often times you are talked down too, disrespected, made to feel like you are a bother to everyone around you. They often give…

  • Hard week, sick, migraine, medication

    Hard Week and Frustration

    Honestly, this has been a hard week. I had a reaction to one of my medications. It just so happens to be the one that keeps the fluid pressure from building up around my brain. My right eye was swollen, my kidneys were not functioning well and I had absolutely no…

  • It is time to stop talking and start doing! It is time to stop allowing my limitations to be a reason to stop. Life is too short to stop!

    Life is too Short

    This past November my best friend passed away after a long fight with breast cancer. The thing is that for all but her last 2 weeks you wouldn’t have known she was sick. She really did live her life on her on terms and fought the good fight. Her passing…

  • Sickness, health, marriage, chronic illness

    In Sickness and in Health

    Let’s think about those words for just a minute. “In Sickness and in Health “, they were probably the easiest words to say. Sort of stuck in between “for richer or poorer” and “Til death do us part”. They seem like the easiest of the three. Especially since we live…